Quality of Life for Disabled Children: Parenting Patterns, Community Social Attitudes, and Social Service Role

Authors

DOI:

https://doi.org/10.21580/sa.v18i1.17507

Keywords:

children with disabilities, parenting patterns, social attitudes, role of the Social Service

Abstract

Phenomena about children with disabilities in Salatiga still show that there are some problems related to the quality aspect of their lives. This study aims to examine parenting patterns, social attitudes, and role of the Social Service in improving the quality of life for children with disabilities. This research is a mixed-methods research using congruent design. The research subjects consisted of 66 parents of children with disabilities selected using the purposive sampling technique and 87 residents of Salatiga City selected using cluster sampling technique. Data was collected through interviews, surveys, and documentation, then analyzed quantitatively and qualitatively. The results show that parents with disabled children have a democratic parenting style, the social attitude of Salatiga City residents is good, full of empathy, and full of support; however, the Social Service Office does not yet have programs directly intended for children with disabilities in Salatiga. Research novelty is reflected by the variables and research method, which are different from previous studies.

Downloads

Download data is not yet available.

Author Biographies

Yusti Arini, Department of English Language Education, Faculty of Cultures and Languages, Universitas Islam Negeri Raden Mas Said Surakarta, Sukoharjo

I am a lecturer of English Language Education, Cultures and Languages Faculty, UIN Raden Mas Said Surakarta

Ika Sulistyarini, Department of English Language Education, Faculty of Cultures and Languages, Universitas Islam Negeri Raden Mas Said Surakarta, Sukoharjo

I am a lecturer of English Language Education, Cultures and Languages Faculty, UIN Raden Mas Said Surakarta

References

Abdullah, Nagoor Meera, Siti Aisyah Zakaria, Wahidah Tumijan, Noor Azhana Mohamad Hamdan, Mohamad Nizam Mohamed Shapie, Mohd Rahizam Abdul Rahim, and Zarizi bin Ab Rahman. “The Benefits and the Perceived Social Support towards Exercise Participation among Persons with Disabilities: A Preliminary Study.” International Journal for Studies on Children, Women, Elderly and Disabled 13 (2021): 7–17. https://www.ijcwed.com/wp-content/uploads/2021/09/IJCWED13_003.pdf.

Akhmetzyanova, Anna, and Lira Artishcheva. “Significant Situations of Interaction of Children with Disabilities.” Education & Self Development 13, no. 1 (2018): 55–64. https://doi.org/10.26907/esd13.1.06.

Aldiss, Susie, Faith Gibson, Sophie Geoghegan, Anna Jewitt, Tara Kerr Elliott, Anna Williams, Jo Wray, and Kate Oulton. “‘We don’t know what tomorrow will bring’: Parents’ Experiences of Caring for a Child with an Undiagnosed Genetic Condition.” Child: Care, Health and Development 47, no. 5 (2021): 588–96. https://doi.org/10.1111/cch.12866.

Arifin, Bambang Syamsul. Psikologi Sosial. Bandung: Pustaka Setia, 2015.

Asa, Gregorius Abanit, Nelsensius Klau Fauk, Lillian Mwanri, and Paul Russell Ward. “Understanding Barriers to the Access to Healthcare and Rehabilitation Services: A Qualitative Study with Mothers or Female Caregivers of Children with a Disability in Indonesia.” International Journal of Environmental Research and Public Health 18, no. 21 (2021): 11546. https://doi.org/10.3390/ijerph182111546.

Awaji, Nisreen Al, Monira Aldhahi, Shahnaz Akil, Salwa Awad, and Eman Mortada. “Quality of Life, Needs and Fears of Mothers of Children with Disabilities in Saudi Arabia during the COVID-19 Lockdown.” International Journal of Environmental Research and Public Health 18, no. 21 (2021): 11442. https://doi.org/10.3390/ijerph182111442.

Balcı, Serap. “Determining the Difficulties Faced by Families with Intellectual Disability Children and the Burden on the Family.” Journal of Psychiatric Nursing 10, no. 2 (2018): 124–30. https://doi.org/10.14744/phd.2018.05657.

Basu, Anna P. “Social Prescribing: Can It Help Disabled Children?” Developmental Medicine & Child Neurology 63, no. 10 (2021): 1132–1132. https://doi.org/10.1111/dmcn.14973.

Batubara, Junita, and Sumathi Maniam. “Enhancing Creativity through Musical Drama for Children with Special Needs (Down Syndrome) in Education of Disabled Children.” Music Scholarship / Problemy Muzykal’noj Nauki 2, no. 2 (2019): 166–77. https://doi.org/10.17674/1997-0854.2019.2.166-177.

Boehm, Thomas L., and Erik W. Carter. “Family Quality of Life and Its Correlates Among Parents of Children and Adults with Intellectual Disability.” American Journal on Intellectual and Developmental Disabilities 124, no. 2 (2019): 99–115. https://doi.org/10.1352/1944-7558-124.2.99.

Bredu-Darkwa, Peter, and Isaac Owusu. “Activity Limitations and Life Satisfaction: A Cross-Sectional Study among Amputees in an Orthopaedic Rehabilitation Centre in Ghana.” Disability, CBR and Inclusive Development 34, no. 2 (2023): 110–31. https://doi.org/10.20372/dcidj.696.

Dardzińska-Głębocka, Agnieszka, and Małgorzata Zdrodowska. “Analysis Children with Disabilities Self-Care Problems Based on Selected Data Mining Techniques.” Procedia Computer Science 192 (2021): 2854–62. https://doi.org/10.1016/j.procs.2021.09.056.

Defrianto, Muhammad, and Alfiasari Alfiasari. “Mental Health of College Students and Its Relation to Life Satisfaction and Social Media Abuse.” Sawwa: Jurnal Studi Gender 15, no. 2 (2020): 193–218. https://doi.org/10.21580/sa.v15i2.6590.

Divoká, Lenka. “Professionalization of Child Protection in the Czech Republic from the Perspective of Sociological Theories.” Czech and Slovak Social Work 17, no. 4 (2017): 30–47.

Duadji, Noverman, and Novita Tresiana. “Kota Layak Anak Berbasis Collaborative Governance.” Sawwa: Jurnal Studi Gender 13, no. 1 (2018): 1–22. https://doi.org/10.21580/sa.v13i1.2201.

Egilson, Snæfrídur Thóra, Linda B. Ólafsdóttir, Anna Sigrún Ingimarsdóttir, Freyja Haraldsdóttir, Ásta Jóhannsdóttir, Barbara E. Gibson, and Stefan Hardonk. “Life Quality and Participation of Disabled Children and Young People: Design and Methods of a Transformative Study.” International Journal of Qualitative Methods 20 (2021): 160940692110167. https://doi.org/10.1177/16094069211016713.

Elin, Carpi. “Stress Disorder in Very Young Children Recognizing Early Trauma.” Journal of Childhood & Developmental Disorders 9, no. 3 (2023): 1–2. https://doi.org/10.36648/2471-1786.9.3.70.

Elsman, Ellen B. M., Mitchel Koel, Ruth M. A. van Nispen, and Ger H. M. B. van Rens. “Quality of Life and Participation of Children with Visual Impairment: Comparison with Population Reference Scores.” Investigative Opthalmology & Visual Science 62, no. 7 (2021): 14. https://doi.org/10.1167/iovs.62.7.14.

Gaurav, Navjit, Vaishali Kolhe, and Atul Jaiswal. “Universal Design: An Embedded Case Study on the Approach towards the Inclusion of Students with Physical Disabilities in Higher Education in India.” Disability, CBR and Inclusive Development 34, no. 2 (2023): 7–26. https://doi.org/10.20372/dcidj.577.

Hikmah, Siti. “Mengantisipasi Kejahatan Seksual terhadap Anak Melalui Pembelajaran ‘Aku Anak Berani Melindungi Diri Sendiri’: Studi di Yayasan Al-Hikmah Grobogan.” Sawwa: Jurnal Studi Gender 12, no. 2 (2017): 187–206. https://doi.org/10.21580/sa.v12i2.1708.

Houtrow, Amy, Alison J. Martin, Debbi Harris, Diana Cejas, Rachel Hutson, Yasmin Mazloomdoost, and Rishi K. Agrawal. “Health Equity for Children and Youth with Special Health Care Needs: A Vision for the Future.” Pediatrics 149, no. Supplement 7 (2022): 1–11. https://doi.org/10.1542/peds.2021-056150F.

Ibrahim, Mohd Ismail, Raishan Shafini Bakar, Surianti Sukeri, Azriani Ab Rahman, Azizah Othman, Hans Van Rostenberghe, Aziah Daud, and Mohd Nazri Shafei. “The Unmet Needs among Parents of Disabled Children at Support Institutions in Kelantan, Malaysia.” Malaysian Journal of Medicine and Health Sciences 15, no. 3 (2019): 74–80. https://myjurnal.mohe.gov.my/public/article-view.php?id=142548.

Jacobsen, Sigurd Eid. “Social Class, Disability, and Institutional Interactions: The Case of Families with Disabled Children in the Welfare State.” Disability & Society, 2023, 1–21. https://doi.org/10.1080/09687599.2023.2230349.

Jenhaug, Line, and Ole Petter Askheim. “Empowering Parents as Co-Producers: Personal Assistance for Families with Disabled Children.” Scandinavian Journal of Disability Research 20, no. 1 (2018): 266–76.

Jr. Elliott, Robert Kingwill, and Ladislav Timulak. Essentials of Descriptive-Interpretive Qualitative Research: A Generic Approach. Washington DC.: American Psychological Association, 2021.

Kazanowski, Zdzisław, and Agnieszka Żyta. “Socio-Pedagogical Determinants of Social Acceptance of People with Disabilities.” International Journal of Special Education (IJSE) 36, no. 1 (2021): 35–48. https://doi.org/10.52291/ijse.2021.36.4.

Kupriyanova, I. E., B. A. Dashieva, and I. S. Karaush. “Mental Health of Disabled Children: A Preventive Aspect.” Bulletin of Siberian Medicine 18, no. 4 (2020): 72–84. https://doi.org/10.20538/1682-0363-2019-4-72-84.

Kusmanto, Thohir Yuli. “Mereka yang Tercerabut Dari Masa Depannya: Analisis Sosiologis Problem Sosial Anak di Indonesia.” Sawwa: Jurnal Studi Gender 8, no. 2 (2013): 225. https://doi.org/10.21580/sa.v8i2.654.

Maher, Anthony J., and Justin A. Haegele. “Disabled Children and Young People in Sport, Physical Activity and Physical Education.” Sport, Education and Society 27, no. 2 (2022): 129–33. https://doi.org/10.1080/13573322.2021.1967119.

McNeilly, Patricia, Geraldine Macdonald, and Berni Kelly. “Rights Based, Participatory Interviews with Disabled Children and Young People: Practical and Methodological Considerations.” Comprehensive Child and Adolescent Nursing 45, no. 2 (2021): 1–10. https://doi.org/10.1080/24694193.2021.1874078.

Molina-Azorin, Jose F. “Mixed Methods Research: An Opportunity to Improve Our Studies and Our Research Skills.” European Journal of Management and Business Economics 25, no. 2 (2016): 37–38. https://doi.org/10.1016/j.redeen.2016.05.001.

Nihayah, Ulin. “Mengembangkan Potensi Anak: Antara Mengembangkan Bakat dan Ekploitasi.” Sawwa: Jurnal Studi Gender 10, no. 2 (May 30, 2015): 135–50. https://doi.org/10.21580/sa.v10i2.1429.

Ólafsdóttir, Linda Björk, Snaefrídur Thóra Egilson, Unnur Árnadóttir, and Stefan C Hardonk. “Child and Parent Perspectives of Life Quality of Children with Physical Impairments Compared with Non-Disabled Peers.” Scandinavian Journal of Occupational Therapy 26, no. 7 (2019): 496–504. https://doi.org/10.1080/11038128.2018.1509371.

Pouya, Sima, Öner Demirel, and Sahar Pouya. “Evaluating the Playground: Focus Group Interviews with Families of Disabled Children.” A/Z : ITU Journal of Faculty of Architecture 15, no. 2 (2018): 137–46. https://doi.org/10.5505/itujfa.2018.99608.

Roth, B, E Jouve, A Daguzan, A Richardson, R Sambuc, O Bernard, and M.C. Lagouanelle-Simeoni. “Descriptive Study of Young Disabled Children Aged 2–6, Enrolled in Mainstream Schools, and Benefiting from Special Needs Assistants in the Bouches-Du-Rhône in 2014.” Archives de Pédiatrie 28, no. 1 (2021): 39–46. https://doi.org/10.1016/j.arcped.2020.10.005.

Sherab, Kezang, and Matthew J Schuelka. “Perceptions of Youth with Disabilities in Bhutan on Family Support, Attitudes, and Encouragement towards Meaningful Community Engagement: Implications for Parental Self-Efficacy.” Disability, CBR and Inclusive Development 34, no. 2 (2023): 27–47. https://doi.org/10.20372/dcidj.623.

Shiraani, F., and N. Carr. “Disabled Children Are Not Voiceless Beings.” Annals of Tourism Research 92 (2022): 103257. https://doi.org/10.1016/j.annals.2021.103257.

Sood, Suruchi, Sarah Stevens, and Carmen Cronin. Desk Review for Developing Measures on Discriminatory Attitudes and Social Norms towards Children with Disabilities in Europe and Central Asia Region: North Macedonia Pilot Study. New York: UNICEF, 2018.

Sood, Suruchi, Sarah Stevens, and Kelli Kostizak. Monitoring and Evaluation Framework to Track and Assess the Results of Interventions Aimed at Changing Attitudes and Social Norms towards Children with Disabilities in Europe and Central Asia. New York: UNICEF, 2019.

Syed, Imran Haider, Waqar Ahmed Awan, and Unaiza Batool Syeda. “Caregiver Burden among Parents of Hearing Impaired and Intellectually Disabled Children in Pakistan.” Iranian Journal of Public Health 49, no. 2 (2020): 249–56. http://www.ncbi.nlm.nih.gov/pubmed/32461932.

Widodo, Bambang. “Upaya Memenuhi Hak Penyandang Disabilitas.” Direktorat Jenderal HAM, March 6, 2020. https://portal.ham.go.id/2020/03/21412/.

Yıldırım, A. Emel Sardohan, and A. Gönül Akçamete. “A Family Centered Training Model Proposal to Meet the Needs of Parents Having Multiple Disabled Child.” International Journal of Early Childhood Special Education 11, no. 2 (2019): 168–82. https://doi.org/10.20489/intjecse.670476.

Downloads

Published

2023-04-30

Issue

Section

Articles